Huntington's Disease Society of America Oklahoma Chapter

The Oklahoma Chapter raises funds to support HDSA's mission of improving the lives of those affected by Huntington's Disease in the state of Oklahoma. The Chapter is dedicated to serving the needs of those affected by HD and Juvenile HD. Its mission is to provide quality HD care, services, and education to patients, families, and community professionals; to increase awareness of HD; and to conduct research contributing to future treatments or cures. HDSA Chapter has support groups in Bixby and Oklahoma City, which occur monthly and supports local neurologists specializing in HD research and treatment at St. John’s Medical Center, Tri City Family Clinic, Norman Regional and Oklahoma Saints Neurology. Additionally, the Chapter provides advocacy support for the Huntington's Disease community at the local, state, and federal levels; including actively advocating The Huntington's Disease Parity Act (H.R. 1015/S. 723), a bill that supports legislation to improve access to Social Security Disability benefits and Medicare coverage for individuals with HD. Members and volunteers raise money for the care and cure of HD through various local fundraisers such as the Oklahoma City Team Hope Walk September 27, Fashion Show October 3, and Woody Guthrie Festival July 8, maintain a website with educational materials and support resources (http://oklahoma.hdsa.org) and provide a range of other services to the local HD community, including a program which provides meals to HD families. The HDSA Oklahoma Chapter is also dedicated to finding a treatment and eventually a cure for this devastating disease through the Human HD Biology Fellowship Program, 29 HDSA Centers of Excellence partnership, Donald A. King Summer HD Research Fellowships, Support of the NINDS induced pluripotent stem cell (iPSC) consortium, HD Research Webinars, Clinical Study/Trials, International Research Initiatives.

The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with Huntington’s disease and their families.